breaking the silence surrounding sickle cell disease
Sickle Cell Action Network is a non-profit organization aimed at raising community awareness while providing support for families affected by sickle cell disease. Our goal is to normalize the conversation around issues that plague the sickle cell community. We believe that the internal cultural stigmas have thwarted the efforts of caregivers, medical professionals and educators who desperately need the continued support to better serve the sickle cell community. By standing on our three internal pillars, we hope to minimize the mental and physical suffering incurred by sickle cell patients nationwide.
Through strategic collaboration with other sickle cell organizations nationwide, we hope to eradicate the disease by educating the next generation. Knowing one’s sickle cell status before having children is the key to preventing new incidences.
Sickle Cell Disease is a rare blood disorder that doesn't get a lot of headlines. Through are various community events, we hope to raise awareness as well as funds and give families a chance to have fun, network and celebrate life.
Sickle Cell Disease (SCD), also known as sickle cell anemia, is a hereditary blood disorder characterized by an abnormality in the oxygen-carrying hemoglobinmolecule in red blood cells. This leads to a propensity for the cells to assume an abnormal, rigid, sickle-like shape under certain circumstances. Sickle cell disease is associated with a number of acute and chronic health problems, such as severe infections, attacks of severe pain (“sickle cell crisis”), and stroke, and there is an increased risk of death.
Sickle cell disease occurs when a person inherits two abnormal copies of the hemoglobin gene, one from each parent. Several subtypes exist, depending on the exact mutation in each hemoglobin gene. A person with a single abnormal copy may not experience symptoms and is said to have sickle cell trait. The complications of sickle cell disease can be prevented to a large extent with vaccination, preventative antibiotics, blood transfusion, and the drug hydroxyurea. A small proportion requires a transplant of bone marrow cells.
This disorder is common in the African-descended population of the United States and Canada. It affects millions of people around the world, mainly those whose ancestors come from sub-Saharan Africa, Spanish-speaking regions (South America, Cuba, Central America), Saudi Arabia, India, and Mediterranean countries (Turkey, Greece, and Italy).
Our SCANbassador program is an exciting way to get involved in your community. Your time and talents are more than welcome! Whether you are a student looking for volunteer hours or someone looking to join a community cause, WE WANT YOU!
The time commitment can be minimal where you are sharing social media posts within your network or you can get more involved with meetings and events.
We know that everyone has a unique skill-set that is waiting to be shared with the community. We are looking forward to meeting with you and allowing you to help us make huge change in the lives of so many families.